Optic Nerve Hypoplasia (ONH): Patient-reported outcomes
Patient-reported outcomes after stem cell therapy for Optic Nerve Hypoplasia (ONH), based on 115 patients in our follow-up registry.
Updated ·
Overall patient-reported outcomes
Physical condition
reported physical improvement
84%
N = 103
Quality of life
reported quality-of-life improvement
81%
N = 105
Treatment satisfaction
satisfied with the treatment outcome
83%
N = 113
Reported change vs. before treatment
Worse No change Small Moderate Significant
| Symptom | Reported change vs. before treatment | Reported improvement |
|---|---|---|
| Light perception | | 76% |
| Nystagmus (uncontrolled eye movement) | | 74% |
| Strabismus (side glances) | | 67% |
| Blindness | | 62% |
| Visual field | | 60% |
| Ability to focus eyes quickly | | 57% |
| Vision in left eye | | 57% |
| Vision in right eye | | 56% |
| Ability to see hand movement | | 54% |
| Ability to see things at a close distance | | 52% |
| Ability to keep eyes focused for a long time | | 50% |
| Colour vision | | 46% |
| Droopy eye lids | | 45% |
| Ability to see things clearly | | 44% |
| Ability to see things at a far distance | | 38% |
| Night vision | | 35% |
| Astigmatism | | 33% |
| Able to count fingers | | 30% |
About this data
Patients self-assess each symptom on a 5-point scale (Worse / No improvement / Small / Moderate / Significant) at follow-up checkpoints after treatment, comparing to their pre-treatment baseline. "Reported improvement" combines the small, moderate and significant buckets. Data is updated daily from our internal patient registry. As with any medical treatment, past results do not guarantee future outcomes — improvements vary from patient to patient.
