Spina Bifida: Patient-reported outcomes

Patient-reported outcomes after stem cell therapy for Spina Bifida, based on 22 patients in our follow-up registry.

Updated ·

Overall patient-reported outcomes

Physical condition
reported physical improvement
91%
N = 21
Quality of life
reported quality-of-life improvement
86%
N = 21
Treatment satisfaction
satisfied with the treatment outcome
82%
N = 22

Reported change vs. before treatment

Worse No change Small Moderate Significant
Symptom Reported change vs. before treatment Reported improvement
Movement in general
100%
Overall strength
100%
General mental ability
100%
Interaction with others
100%
Hand control
100%
Trunk control
100%
Appetite
100%
Energy
100%
Limb muscle strength
95%
Trunk muscle strength
95%
Balance
95%
Range of movement
90%
Fine motor control
86%
Crawling
83%
Spasticity
83%
Bladder control
80%
Standing up
75%
Walking
74%

About this data

Patients self-assess each symptom on a 5-point scale (Worse / No improvement / Small / Moderate / Significant) at follow-up checkpoints after treatment, comparing to their pre-treatment baseline. "Reported improvement" combines the small, moderate and significant buckets. Data is updated daily from our internal patient registry. As with any medical treatment, past results do not guarantee future outcomes — improvements vary from patient to patient.

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