Brazilian ONH and SOD Stem Cell Patients

Manuela and Giulia come from the same region of Brazil. News of Manuela's fundraising efforts introduced Giulia's family to umbilical cord blood stem cells. While Manuela has optic nerve hypoplasia, Giulia suffers from septo optic dysplasia. Both conditions include underdevelopment of the optic nerve. Both received transplants of umbilical cord blood stem cells administered at Qingdao's Chengyang's People's Hospital.

Improvement statistics

Based on follow-up reports from 115 patients across 276 forms, here is the percentage who self-reported any improvement after treatment.

76%
Light perception
reported improvement · N=100
74%
Nystagmus (uncontrolled eye movement)
reported improvement · N=97
67%
Strabismus (side glances)
reported improvement · N=70
62%
Blindness
reported improvement · N=102
60%
Visual field
reported improvement · N=95
57%
Ability to focus eyes quickly
reported improvement · N=90
57%
Vision in left eye
reported improvement · N=92
56%
Vision in right eye
reported improvement · N=89
54%
Ability to see hand movement
reported improvement · N=91
52%
Ability to see things at a close distance
reported improvement · N=94

About this data

Patients self-assess each symptom on a 5-point scale (Worse / No improvement / Small / Moderate / Significant) at follow-up checkpoints after treatment, comparing to their pre-treatment baseline. "Reported improvement" combines the small, moderate and significant buckets. Data is updated daily from our internal patient registry. As with any medical treatment, past results do not guarantee future outcomes — improvements vary from patient to patient.

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